What's Happening & When?


What’s Happening & When?

Histiocytosis UK 2021 – Forum on 18th November 2021
The 7th Annual UK Histiocytosis Forum – Hosted by Histio UK

Commencing at 12:15 Langerhans Cell Histiocytosis (LCH and Other Rarer)

12:30 Dr. Hanhua LIU

Presenting: Incidence & Survival of Langerhans Cell Histiocytosis: A National Registry Study in England 2013-2018


13:00 Abstracts  

Dr. Vassilios Papadakis & Dr. Marina Servitzoglou – Greek Paediatric LCH National Registry Results over the last two decades.

Dr. Samir Patel – A Relapsing Disease Description RDD


13:45 Dr. Eli Diamond

Member of the interdisciplinary team at Memorial Sloan Kettering treating and studying patients with histiocytic disorders such as Erdheim-Chester disease and Langerhans cell histiocytosis. Clinical Expertise – Neuro-Oncology; Adult Brain Tumours; Histiocytosis.

Presenting: Targeted treatment of histiocytosis in adults



Commencing 14:30 Haemophagocytic lymphohistiocytosis (HLH)

Dr Mark Bishton – Consultant Haematologist, Nottinghamshire University Hospitals Trust:

Dr. Hanhua Liu – Senior Cancer Intelligence Analyst, Public Health England.                                     

Peter Stilwell – Senior Data Analyst, Public Health England.

Presenting: Histiocytic disease: NDRS approach to understanding rare disease and cancer at a population level


14:55 Abstracts

Dr. Andrew Duncombe – In a single large centre observational cohort study of hospitalised covid-19 patients, secondary hlh (shlh) was rare but hyperinflammation (hi) common and hi severity predicted response to early intervention with dexamethasone assessed by day 28 mortality.

Dr. Joseph Guppy – A case of macrophage activation syndrome (mas)/haemophagocytic lymphohistiocytosis (hlh) requiring extra-corporeal membrane oxygenation in a patient with severe multisystem lupus erythematosus.

Dr. Jeronimo Moreno-Cuesta – Hemophagocytes in covid-19 disease: a novel pilot study using cellsievetm liquid biopsy.


 HLH in Practice

15:35 Dr. Rob Sandler – Rheumatology Registrar, Sheffield Teaching Hospitals.

Presenting: HLH after Bone Marrow Transplant 


15:55 Dr Naina McCann – Infectious Diseases Registrar and Dr Pratyasha Saha Internal Medicine Speciality Trainee, University College London Hospital 

Presenting: Complications and causes of death in HLH.


16:15 Dr. Harry Wilson – Morkeh – Rheumatology Registrar, Hammersmith Hospital 

Presenting: HLH in pregnancy


16:35 Dr. Rebecca Marsh

Member of the pediatric hematologist-oncologist team affiliated with Cincinnati Children’s Hospital Medical Center.

Presenting: Quercetin Suppresses XIAP Deficiency Associated Hyperinflammation


Summary & Closing

Who will this be of interest to?

Clinicians, Consultants, Trainees and Researchers, already working in the field of Histiocytosis and or new to this disorder or development and knowledge transfer of these rare conditions.

Aims & Objectives.

Aims: Raise Awareness in Latest Developments in Clinical practice and Research.

Objectives: Key elements of good practice and latest treatment guidelines.

Outcomes: Knowledge transfer and good practice development.


RCPCH  has approved this activity for CPD in accordance with the current RCPCH CPD Guidelines

RCPATH  maximum number of CPD credits which can be claimed 5.

Spaces will be limited

To register your interest please email

Closing date 31st October 2021

Histiocytosis Awareness 
Histiocytosis Awareness 

Support the Histio Challenge
Histio Champions do it because we CARE!
High Dive High Jump Hula (in a skirt) Hula Hoop
House Party Hop Scotch Handstand Hop Frog
High Jump Hats Hike Huddle (the biggest)
Histio Gram (or Kilo lose) Hundreds &1000 bake off Handball (Beach Town)
Hockey Hoody Day Hero just for one? (in someone’s eyes
Half a something- Marathon? Hair Day – To Hair or not to Hair
Hope to Cure Day High Tea

Histio Wear Blue Month :
Histio Wear Blue Day is an annual event held throughout Histio Awareness Month of September or you may hold your own Histio Wear Blue day at any time!

Histio Hatters :
Histio Hatters – Is an annual event held during Histio Awareness Month of September or you may hold your own Histio Hatters day at any time of the year!

It is one big day when the UK unites to show its support and raises vital funds for children, young people and adults with histiocytosis. Get together with your colleagues, friends and family, wear a histio hat and join the fun.

When is Histio Hatters Day?
Histio Hatters Day is officially held on your chosen Friday in September each year.

Show Time :
This is an annual UK wide fundrasing event where everyone of any age can show off their talents.

It is easy and fun to take part in what ever your talent:
Act,Cook,Dance,play an Instrument,Recite Poetry,Sing,Jest or Juggle.

The Floor is yours!!

Or Why Not Join Our On-Line Community @
Facebook: ‘Histio Champions UK ’ celebrating patients, families and champions of all Histio Awareness, ‘Histio Champions’ ‘Histio UK LCH’ ‘Histio UK HLH’ discussion forum pages or Twitter: @histiouk

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