No-one should die of Histiocytosis

Our research programmes provide a beacon of hope for the many children and adults battling Histiocytosis, to ensure this research continues in these difficult times we ask you to pledge your support by making a donation today. THANK YOU.
A message from some of the Clinicians & Researchers that your donation supports.

HISTIO UK - In it Together

We are incredibly pleased to announce that Histio UK have been successful in our application to the National Lottery Community Fund. The fund has awarded Histio UK the sum of £36, 560 for our Histio Communities Project: Histio Connect – Let’s Talk – an inclusive online discussion platform for each of the different Histiocytic disorders.

The platform will provide our “Histio Champions” the opportunity to chat, share their voices, their stories, achievements and memories enabling the opportunity to raise awareness, inspire others, learn more about other parents, patients, families, supporters, and volunteers who shape this rare community.
Our thanks to all our Histio Community Champions and HM Government for making this possible.

What is Histiocytosis

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No-one should die of Histiocytosis.

Despite the misery it causes, histiocytosis is too rare a disease to have generated substantial research in medical circles. Unfortunately, for every child or adult fighting for his or her life, the pain and suffering are just as severe for children and adults afflicted with other better known disorders receiving funding. For the children and adults battling these illnesses, there is now reason to hope. To ensure the research and information support work continues, we ask for your help, to complete the funding puzzle.

Share Your Voice -Your Story.


Research – together we will find a cure!

Histiocytosis UK is dedicated to promoting and funding scientific research into uncovering not only the causes of all histiocytic diseases, which include Langerhans’s Cell Histiocytosis and Haemophagocytic Lymphohistiocytosis, but also ensuring early diagnosis, effective treatment and a cure.

Histio UK also aims to support patients and their families as well as raise public and professional awareness of histiocytic disorders. Its team of Trustees include the UK’s leading paediatric LCH and HLH specialists.

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Fifi's story - By Mum Tiffany Rumble

Paediatric Langerhans Cell Histiocytosis Symptoms, Diagnosis, Treatment and raising essential funds for research.

About 50 children in the UK develop LCH each year. It can affect children of any age, and is more common in boys than in girls.


Your support is more vital than ever, to ensure that we can continue to deliver our Research and Information Programmes. Please make a donation today. Thank you.

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