Macmillan provides practical, medical and financial support for families and promotes and campaigns for better cancer care.
Macmillan also helps patients and their families with LCH and has a range of booklets and leaflets available (including information on LCH and chemotherapy).
Ask Macmillan: +44 808 808 00 00
CLIC Sargent is a UK cancer charity for children and young people (up to the age of 25 years), and their families. They provide clinical, practical, financial and emotional support and aims to help the whole family deal with the impact of the disease.
Free Child Cancer Helpline:
+44 800 197 0068 9am-5pm (UK)
Contact a Family (CAF) Personal Action Support Network
CAF bring families together so they can support each other, although CAF are not a Histiocytosis specific advice service, they do provide general information, advice and support and they campaign to improve family circumstances. If there is not a Histio specific group near you, please access their Personal Action Network (PAN) support groups they have 1500 groups on their database with 200 shown on their map emap and 600 on their network.
If you would like to find a support group close to you or for more information, follow the links to:
Teenage Cancer Trust
Our vision is a future where young people’s lives don’t stop because they have cancer. We make sure they’re treated as young people first, cancer patients second and everything we do aims to improve their quality of life and chances of survival.
Sibs is the UK charity representing the needs of siblings of disabled people. Siblings have a lifelong need for information, they often experience social and emotional isolation, and have to cope with difficult situations.
Scope Services directory
Citizens Advice Bureau
Can advise on employment issues.
Website about children and parenting offering support and advice on caring for seriously ill children. Look at Tough Topics in the Parenting section.
British Association for Counselling and Psychotherapy can help to find a private therapist in your area.
Counselling, support and information for all relationships.
Institute of Fundraising
Health & Safety Executive
Food Standards Agency
Information Commissioners Office