Charities, Agencies & NHS Resources


Macmillan provides practical, medical and financial support for families and promotes and campaigns for better cancer care.

Macmillan also helps patients and their families with LCH and has a range of booklets and leaflets available (including information on LCH and chemotherapy).
Ask Macmillan: +44 808 808 00 00


a trading title of – CLIC Sargent

Young Lives vs Cancer CLIC Sargent is a UK cancer charity for children and young people (up to the age of 25 years), and their families. They provide clinical, practical, financial and emotional support and aims to help the whole family deal with the impact of the disease.

Contact a Family (CAF) Personal Action Support Network
CAF bring families together so they can support each other, although CAF are not a Histiocytosis specific advice service, they do provide general information, advice and support and they campaign to improve family circumstances. If there is not a Histio specific group near you, please access their Personal Action Network (PAN) support groups they have 1500 groups on their database with 200 shown on their map emap and 600 on their network.
If you would like to find a support group close to you or for more information, follow the links to:

Other Support Services.

Family Fund

Family Fund

Carepages websites are free patient blogs that connect family and friends during a health challenge.


Caringbridge provides free websites that connect family and friends during a serious health event. You can share health updates, and receive messages of support.


The therapeutic support and information services we offer can help individuals and their families come to terms with and manage the challenges of a serious illness.

Teenage Cancer TrustTeenage Cancer Trust

Our vision is a future where young people’s lives don’t stop because they have cancer. We make sure they’re treated as young people first, cancer patients second and everything we do aims to improve their quality of life and chances of survival.


Sibs is the UK charity representing the needs of siblings of disabled people. Siblings have a lifelong need for information, they often experience social and emotional isolation, and have to cope with difficult situations.

Cardiff and Vale Advocacy Gateway. The Service is open Monday to Friday 9am-5pm. For further details please see the attached link: 

Scope Services directory

Citizens Advice Bureau
Can advise on employment issues.

Kids Health
Website about children and parenting offering support and advice on caring for seriously ill children. Look at Tough Topics in the Parenting section.

British Association for Counselling and Psychotherapy can help to find a private therapist in your area.

Counselling, support and information for all relationships.

Institute of Fundraising

Health & Safety Executive

Food Standards Agency

Information Commissioners Office

Gambling Commission

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