Charities, Agencies & NHS Resources

Macmillan
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Macmillan provides practical, medical and financial support for families and promotes and campaigns for better cancer care.
Macmillan also helps patients and their families with LCH and has a range of booklets and leaflets available (including information on LCH and chemotherapy).www.macmillan.org.uk
Ask Macmillan: +44 808 808 00 00

CLIC Sargent
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CLIC Sargent is a UK cancer charity for children and young people (up to the age of 25 years), and their families. They provide clinical, practical, financial and emotional support and aims to help the whole family deal with the impact of the disease.

Free Child Cancer Helpline:
+44 800 197 0068 9am-5pm (UK)

www.clicsargent.org.uk

Contact a Family (CAF) Personal Action Support Network
CAF bring families together so they can support each other, although CAF are not a Histiocytosis specific advice service, they do provide general information, advice and support and they campaign to improve family circumstances. If there is not a Histio specific group near you, please access their Personal Action Network (PAN) support groups they have 1500 groups on their database with 200 shown on their map emap and 600 on their network.
If you would like to find a support group close to you or for more information, follow the links to:

www.cafamily.org.uk/advice-and-support/in-your-area/

www.cafamily.org.uk/know-your-rights/

Other Support Services
Scope Services directory www.scope.org.uk/Support/services-directory?Type%20of%20service=befriending

Family Fund

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http://www.familyfund.org.uk/

Carepages
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Carepages websites are free patient blogs that connect family and friends during a health challenge.

www.carepages.com

Caringbridge
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Caringbridge provides free websites that connect family and friends during a serious health event. You can share health updates, and receive messages of support.

www.caringbridge.org

Citizens Advice Bureau
Can advise on employment issues.

www.citizensadvice.org.uk

CancerCare
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The therapeutic support and information services we offer can help individuals and their families come to terms with and manage the challenges of a serious illness.

www.cancercare.org.uk

Teenage Cancer Trust
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Our vision is a future where young people’s lives don’t stop because they have cancer. We make sure they’re treated as young people first, cancer patients second and everything we do aims to improve their quality of life and chances of survival.

www.teenagecancertrust.org

Sibs
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Sibs is the UK charity representing the needs of siblings of disabled people. Siblings have a lifelong need for information, they often experience social and emotional isolation, and have to cope with difficult situations.

http://sibs.org.uk/

Kids Health
Website about children and parenting offering support and advice on caring for seriously ill children. Look at Tough Topics in the Parenting section.
www.kidshealth.org.uk

BACP
British Association for Counselling and Psychotherapy can help to find a private therapist in your area.
www.bacp.co.uk

Relate
Counselling, support and information for all relationships.

http://www.relate.org.uk/

Institute of Fundraising

http://www.institute-of-fundraising.org.uk/guidance/about-fundraising/

Health & Safety Executive

http://www.hse.gov.uk/risk/index.htm

Food Standards Agency

http://www.food.gov.uk/business-industry/guidancenotes/#.U85lzssg9jo

Information Commissioners Office

http://ico.org.uk/

Gambling Commission

http://www.gamblingcommission.gov.uk/

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Please use the form below to contact Histio UK

When we are out of the office and over holiday periods we have limited access to email and telephone. We will respond to your enquiry as soon as it is possible or upon our return. Thank You.

Telephone: 01733 309619 - Please note this is not a 24 hour number - 9am to 5.30pm

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