Histiocytosis a rare disease
Despite the misery it causes, histiocytosis is too rare a disease to have generated substantial research in medical circles.
Unfortunately, for every child or adult fighting for his or her life, the pain and suffering are just as severe for children and adults afflicted with other better known disorders receiving funding.
For the children and adults battling these illnesses, there is now reason to hope.
To ensure the research and information support work continues, we ask for your help, to complete the funding puzzle.
Our research programmes provide a beacon of hope for the many children and adults battling Histiocytosis, to ensure this research continues we ask you to pledge your support.
Histio Bear Hugs
Help us bring “hugs” to those suffering from Histiocytosis
Histio Bear does not hold a passport and so can only travel within the UK or to Eire and will not travel during 1st November to 30th January.
Histio bear hugs for patients of all ages - Do you know a child, young person or adult that would like a “Histio Bear” Hug? Then nominate them here:
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Histio UK. Litton House, Saville Road Peterborough PE3 7PR. Thank you for your participation.
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Statement of Confidentiality: The information provided here is covered by the Data Protection Act and is for analytical and statistical research only and will not be shared with any other organisation.
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News Stories and Articles
Some of the articles presented on this website are accessed through RSS feeds from third-party sources that are not necessarily sourced by or part of Histio UK. While we try to select appropriate feeds to prevent objectionable content from being displayed, the presence of any article does not indicate endorsement or recommendation by Histio UK.
pubmed: histiocytosis[mesh t...
NCBI: db=pubmed; Term=histiocytosis[MeSH Terms]
Cutaneous and breast Langerhans cell sarcoma.
J Eur Acad Dermatol Venereol. 2016 Oct;30(10):e33-e34
Authors: Castro-González E, Bastida J, Rivero-Vera JC, Camacho-Galán R, Limeres-González MA, Jiménez-Bravo de Laguna S, Valerón-Almazán P
PMID: 26332733 [PubMed - indexed for MEDLINE]
Xanthoma disseminatum: improvement in disfiguring facial lesions with cladribine.
J Eur Acad Dermatol Venereol. 2016 Oct;30(10):e43-e44
Authors: Gupta V, Khaitan BK, Patra S, Yadav R
PMID: 26289386 [PubMed - indexed for MEDLINE]
Hand-Schüler-Christian disease presenting with recurrent, bilateral, symmetrical mandibular lesions in an 8-year-old boy: report of a case.
Spec Care Dentist. 2015 Nov-Dec;35(6):316-21
Authors: Emmanouil D, Birpou E, Chatzidimitriou K, Matsioula C, Christopoulos P, Tosios K
INTRODUCTION: Hand-Schüller-Christian disease (HSC) is the unisystem multifocal form of Langerhans Cell Histiocytosis (LCH) and is primarily seen in infants and children.
CASE REPORT: An 8-year-old boy was referred for acute mandibular pain. His medical history included otic LCH and diabetes insipidus at age of 11 months. Intraorally, a pressure sensitive swelling, and radiographically, extensive bone loss were revealed on the area of lower second primary molars. The primary molars were extracted and histological examination confirmed the final diagnosis of HSC. The patient was treated with chemotherapy and the lesions decreased considerably. Two years later, a new swelling was recorded in the same area bilaterally. Biopsy confirmed recurrent HSC disease and the patient entered an alternative chemotherapy protocol. Six months later, improvement of the lesions was revealed.
CONCLUSIONS: Dentists can contribute to a timely and valid identification of HSC disease by correctly differentially diagnosing lesions of head and neck.
PMID: 26243405 [PubMed - indexed for MEDLINE]
If you know of a Histiocytosis related article that is not shown here, please send the article to Histio@HistioUK.org.
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