What's Happening & When?

UK Histicytosis Forum
5th UK Histiocytosis Forum
Date: 28th November 2019 Location: Kings Cross-London, Time:11:00-16:30.
This is a free of charge event, space is limited. Please confirm your attendance
by return email. The cut-off date for registration will be Friday 18th October 2019.

Agenda/ Program
11:00-13:00 Session I. Haemophagocytic Lymphohistiocytosis Histiocytosis
a) Late presentations of primary HLH - Claire Booth
b) UK Hyperferritinaemia audits - Ethan Sen/*Meghan Sykes/*Aidan Harris
c) The UK HLH Across Specialty Collaboration (HASC) initiative –
Rachel Tattersall
d) Case-based discussion

13:00- 13:30 Light Refreshment

13:30-14:00 Joe West - Maximising the use of national electronic health data
sources in England to ascertain, register and undertake epidemiologic research
in Langerhans cell histiocytosis and Haemophagocytic Lymphohistiocytosis.

14:00-16:30 Session II, LCH, ECD and the inflammatory myeloid neoplasms
a) Pathogenesis of inflammatory myeloid neoplasms - Paul Milne
b) ECD in the UK: initial report from the UKHR - Matthew Collin/*Tal Munir/
*Catherine Borysiewicz /*Kris Bowles
c) Keynote address ‘ Management of histiocytosis in adults’ Julien Haroche
d) Case-based discussion
* tbc

September is Histiocytosis Awareness Month
Histiocytosis Awareness Month – September
Bubble Awareness LARGE No One

Support the Histio Challenge
Histio Champions do it because we CARE!
High Dive High Jump Hula (in a skirt) Hula Hoop
House Party Hop Scotch Handstand Hop Frog
High Jump Hats Hike Huddle (the biggest)
Histio Gram (or Kilo lose) Hundreds &1000 bake off Handball (Beach Town)
Hockey Hoody Day Hero just for one? (in someone’s eyes
Half a something- Marathon? Hair Day – To Hair or not to Hair
Hope to Cure Day High Tea

Histio Wear Blue Month :
Histio Wear Blue Day is an annual event held throughout Histio Awareness Month of September or you may hold your own Histio Wear Blue day at any time!

Histio Hatters :
Histio Hatters – Is an annual event held during Histio Awareness Month of September or you may hold your own Histio Hatters day at any time of the year!

It is one big day when the UK unites to show its support and raises vital funds for children, young people and adults with histiocytosis. Get together with your colleagues, friends and family, wear a histio hat and join the fun.

When is Histio Hatters Day?
Histio Hatters Day is officially held on your chosen Friday in September each year.

Show Time :
This is an annual UK wide fundrasing event where everyone of any age can show off their talents.

It is easy and fun to take part in what ever your talent:
Act,Cook,Dance,play an Instrument,Recite Poetry,Sing,Jest or Juggle.

The Floor is yours!!

If Retail is YOUR thing!
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Or Why Not Join Our On-Line Community @
Facebook: ‘Histio Champions UK ’ celebrating patients, families and champions of all Histio Awareness, ‘Histio Champions’ 'Histio UK LCH' 'Histio UK HLH' discussion forum pageS or Twitter: @histiouk

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Telephone: 01733 309619 - Please note this is not a 24 hour number - 9am to 5.30pm

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