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Create your own fund

Create your own specially named fund

Everyone is different, but some people want to do something positive in a difficult situation. Some families find that friends and other family members also want to do something to show their support.

Often this may mean fundraising for Histio UK. That is why we have created our Specially Named Fund.
Families and friends decide to set up a named entry as a way of contributing and making a difference while a patient, child or adult is on treatment, in recognition of the support they received or in celebration of successful treatment. Sometimes families choose to set up a named fund at Histio UK in memory of their friend or relative when they sadly do not survive their particular form of Histiocytosis.

This can be a way to create a lasting legacy for their friend or relation and make a difference to other patient’s lives in the future.

Specially Named Funds are used in direct relation to our work – this could be in, research, publications, information or the funds may support our awareness programs as well as our general work helping all patients, diagnosed with Histiocytosis as well as their families and friends.

During and after their Histiocytosis experiences, families sometimes consider setting up their own charity. For many, our Specially Named Funds may be a suitable alternative. We can help families to achieve their fundraising objectives, while taking away the administrative burden of setting up and running a charity. Families and friends can take advantage of our experience and resources, minimising the costs to them so they can focus on raising funds and raising awareness of this devastating disease. All funds are managed in benefit of our objectives.

Our objectives:


The relief of sickness and preservation of good health among patients affected by histiocytic diseases their families and carers, in particular but not exclusively by:

(i) the promotion and furtherance of scientific research into the physiology and pathology of histiocytes and the aetiology of histiocytocytic diseases, the useful results of which will be disseminated for the public benefit;

(ii) the development of more accurate means of diagnosis, improved protocols for management of patients and ultimately measures for prevention of histiocytic diseases;

(iii) the provision and dissemination of information, education and knowledge in support of patients and families affected by the disease to include the medical professions and general public;

(iv) collaboration with interested individuals and organisations.

Why create a fund?


Histiocytosis HLH, LCH and the rarer forms such as ECD, JXG, Rosai Dorfman and diabetes insipidus are probably words that you never thought you would associate with your child, friend or your family member. The diagnosis can be frightening and the journey can be challenging for the whole family.

Everyone is different, but some people want to do something positive in a difficult situation. Some families find that friends and other family members also want to do something to show their support.
Often this may mean fundraising for Histio UK. That is why we have created our Specially Named Funds.


Specially Named Funds


You can fundraise together with friends and family towards a specially named fund in aid of Histio UK. Donations come direct to Histio UK to help children, young people and adults with Histiocytosis.
You can help us provide research and reach more people.


Who can set up a Specially Named Fund?


As a parent, family member or friend of either a child, young person or adult you can set up a fund in memory of someone lost to the disease or who is currently receiving treatment or has completed their treatment.

How do I register?
It is quick and easy to set up a fund download a form or email us at istio@HistioUK.org and we will send you one.

How does it work?
Whether it is just you, your family or friends, your workplace, school or college that want to raise money for your fund, we will help find just the type of fundraising for you - from fundraising in your lunch break, to taking on a sporty challenge or organising your own event.


What to do next:

  • Decide on a name for your fund, for example the ‘The Robert Smith Fund’ or
    ‘Team Smith’
  • Complete the registration and as soon as you hear back from us you can set up
    your Giving online page (we can help if you would like) then we will set up
    your special named fund entry.

Registration Form

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Telephone: 01733 309619 - Please note this is not a 24 hour number - 9am to 5.30pm

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